#Endometriosis Awareness Month was created to raise awareness of the disease which affects an estimated 176 million women worldwide and up to 1 in 10 women. Awareness, however, only goes so far if treatment is not advanced. We strongly believe that high quality research is the only way to advance treatment! If you’re one of the many women living with this disease, or have a close relative that does, you can help researchers learn more about the underlying causes of Endometriosis as well as develop better treatment options. One such ongoing study is the ROSE study (Research OutSmarts Endometriosis) at the Feinstein Institute for Medical Research at Northwell Health.
Women with a diagnosis of endometriosis, over the age of 18, who are not pregnant or breastfeeding can become involved in the ROSE study. Each participant will be asked to:
- Answer a health history questionnaire
- Answer questions about how endometriosis impacts her life
- Provide a DNA sample from either a blood sample (from the arm) or a cheek cell swab
- Offer a sample of menstrual flow that can be collected at home using a simple procedure; this collection is optional
- For women who are undergoing surgery or have had surgical treatment for endometriosis, allow ROSE study researchers to collect excess endometrial tissue samples (not needed for your diagnosis/treatment) removed during surgery
First-degree relatives (siblings, parents and/or children, both women and men) of women with endometriosis who do not have endometriosis are also being recruited. Each unaffected participant will be asked to:
- Answer a health history questionnaire
- Provide a DNA sample from either a blood sample (from the arm) or a cheek cell swab
- Offer a sample of menstrual flow that can be collected at home using a simple procedure; this collection is optional
Women without endometriosis are being recruited to participate as control or comparison subjects through the Feinstein’s Genotype and Phenotype (GAP) Registry. Each non-diagnosed participant will be asked to:
- Enroll in the GAP
- Answer a health history questionnaire
- Provide a blood sample (from the arm)
- Offer a sample of menstrual flow that can be collected at home using a simple procedure
For additional information, please contact us at
ROSE@northwell.edu or (516) 562-ENDO (3636)
Interested in seeing what other research trials are going on for Endometriosis? A place to start is the National Institutes of Health Clinical Trial Registry where there are 18 ongoing and planned studies currently listed.
